Mistrust in clinical research among minority communities isn’t just a feeling, it’s a reality shaped by history, inequality, and ongoing disparities in healthcare access and treatment.

As someone working in this space, I see it firsthand. Even with all the progress we’re making, many people still carry a fear of being exploited or harmed in clinical trials. And that fear is not unfounded, it’s rooted in generations of experience and stories passed down through families and communities.

One of my patients once told me he felt like he was always being used as a “guinea pig.” That moment stuck with me. But after a heartfelt conversation, he began to see his participation in a different light, not as someone being used, but as someone playing a vital role in advancing science, improving care, and helping others like him.

This shift in perspective doesn’t happen overnight. It takes time, empathy, and most importantly, culturally sensitive education. We can’t overlook how important it is to meet people where they are, with respect, with clarity, and with an understanding of their experiences.

Wrong messages have been passed down for too long. It’s up to all of us, researchers, healthcare workers, community leaders, to change the narrative. We must become advocates for trust, truth, and transparency.

Every conversation matters. Every story shared brings us one step closer to a healthcare system that truly serves everyone.

Thank you for being part of that change.

Edith Declan

👤 About the Author

Edith Declan is a Clinical Researcher, Nurse Practitioner, and passionate Public Speaker committed to improving healthcare outcomes for underrepresented communities. As a Community Engagement Specialist, she works at the intersection of medicine and trust, bridging the gap between researchers and the communities they serve.